Relying on God’s Strength

We often hear people talk about relying on God’s strength through the difficult times.  But what does that look like?  How do we find strength for the long haul, especially when we are so tired?

We can learn from the ways Jesus handled His own caregiving responsibilities while on Earth.

  • He frequently spent time alone in prayer
  • He often prayed with His closest friends
  • He publicly thanked God the Father for what God had provided.
  • He faced each crisis with calm assurance because He had placed His confidence in God
  • He delegated work to other people
  • He grieved the losses of those He loved with a sense of hope, because He had an eternal perspective

I am sure if you think and pray upon it, you will find many examples from Jesus’ life that model for us the attributes that can make our caregiving more rewarding and fulfilling. But even if we just focus on the above points, we can grow closer to our Lord as we do the work of being His hands and feet for our loved ones.

Look to Jesus as your ultimate model of a Giver of Care (emotionally and spiritually), and follow His example in your own caregiving work.  Obviously prayer is an important part of this, as ½ of his techniques involved prayer.  If you are at a loss for prayer, don’t worry.  God already gave us one;  The Lord’s Prayer.  Don’t forget to ask others to pray for you and your family as you navigate this difficult time of life.  I know when I have had my greatest pain and hardships, I could actually feel the prayers of others when I felt too lost to pray myself.

Jesus faced each crisis with calm assurance because He had placed His confidence in God.  We need to ask ourselves if we are keeping God’s promises forefront in our mind; which can be difficult to do when overwhelmed with your own life, plus taking care of someone.  How can I switch over to this calm assurance?  For myself, I leave post it notes on the mirro in my bathroom.  Little inspirational sayings or bible verses.  Goodness knows that my mind is so busy thinking of what I have to do next, that these positive thoughts might never enter my brain if I don’t have some sort of reminder.  The same goes for the eternal perspective.  Reminders and prayers work.

Yes, Jesus delegated.  You can too!  Using the Genus™ app, you can create a care circle of friends and family to provide respite care or perhaps a meal.  If your church is involved with using Genus™, then maybe you can enlist help there as well.  Don’t feel you shouldn’t ask for help.  Jesus asked for help.   Remember that you are providing an opportunity for others to be blessed by being His hands and feet for your loved one.  Being a martyr and trying to do it all yourself doesn’t honor God or your loved one.

Jesus did all these things and more.  We can use him as our Givers of Care Role Model.  He wants to help.  All we have to do is ask!

 

 

 

When Your Loved One Can’t Communicate Clearly

Givers-of-careOne of the most difficult situations to deal with when caring for a loved one with a brain disease such as dementia, is when the patient cannot clearly communicate his/her wants and needs.  Even when we have provided the necessary home-care or nursing care for their safety, we worry how their emotional safety and if their needs are being met.   How can our loved ones communicate needs, interests and desires when they can’t clearly communicate?

The Alzheimer’s Association has some good resources for communicating with Alzheimer’s patients as they progress.  You will want to spend a great deal of time reading from the resources here.

This is Me!

One idea is to create a “This is Me” document for caregivers to have access to when they care for your loved one; either at home or in a facility.  Ideas to include in the document (worded as you speaking for the patient).

  • Name I like to be called.
  • Where I live: The area (not the address) where you live and how long you have lived there.
  • The person(s) who knows me best: This may be a spouse, relative, friend or care-worker.
  • I would like you to know: Include anything you feel is important and will help staff to get to know and care for you, eg I have dementia, I have never been in hospital before, I prefer female caregivers, I am left-handed, I am allergic to…, other languages I can speak.
  • My background, family and friends (home, pets and any treasured possessions): Include place of birth, education, marital status, children, grandchildren, friends and pets. Add religious or cultural considerations.
  • Current and past interests, jobs and places I have lived and visited: Include career history, voluntary experience, clubs and memberships, hobbies, sports or cultural interests, favorite or significant places.
  • The following routines are important to me: What time do you usually get up/go to bed? Do you have a regular nap or enjoy a snack or walk at a particular time in the day? Do you have a hot drink before bed, carry out personal care activities in a particular order or like to watch the evening news?
  • What time do you prefer to have breakfast, lunch, evening meal?
  • Things that may worry or upset me: Include anything you may find troubling, eg family concerns, being apart from a loved one, or physical needs such as being in pain, constipated, thirsty or hungry. List environmental factors that may also make you feel anxious, eg open doors, loud voices or the dark.
  • What makes me feel better if I am anxious or upset: Include things that may help if you become unhappy or distressed, eg comforting words, music or TV. Do you like company and someone sitting and talking with you or do you prefer quiet time alone?
  • My hearing and eyesight: Can you hear well or do you need a hearing aid?
  • How is it best to approach you? Is the use of touch appropriate?
  • Do you wear glasses or need any other vision aids?
  • How we can communicate: How do you usually communicate, eg verbally, using gestures, pointing or a mixture of both? Is the use of touch appropriate?
  • Can you read and write and does writing things down help?
  • How do you indicate pain, discomfort, thirst or hunger? Include anything that may help staff identify your needs.
  • Are you fully mobile or do you need help? Do you need a walking aid? Is your mobility affected by surfaces? Can you use stairs? Can you stand unaided from a sitting position? Do you need handrails? Do you need a special chair or cushion, or do your feet need raising to make you comfortable?
  • What physical activity do you prefer?
  • My sleep: Include usual sleep patterns and bedtime routine. Do you like a light left on or do you find it difficult to find the toilet at night? Do you have a favored position in bed, special mattress or pillow?
  • My personal care: List your usual practices, preferences and level of assistance required in the bath, shower or other. Do you prefer a male or female caregiver? Do you have preferences for brands of soaps, cosmetics, toiletries, continence aids, shaving or teeth cleaning products and dentures? Do you have particular care or styling requirements for your hair?
  • How I take my medication: Do you need help to take medication? Do you prefer to take liquid medication?
  • My eating and drinking: Do you prefer tea or coffee? Do you need help to eat or drink? Can you use cutlery or do you prefer finger foods? Do you need adapted aids such as cutlery or crockery to eat and drink? Does food need to be cut into pieces? Do you wear dentures to eat or do you have swallowing difficulties? What texture of food is required to help – soft or liquid? Do you require thickened fluids? List any special dietary requirements or preferences including being vegetarian, and religious or cultural needs. Include information about your appetite and whether you need help to choose food from a menu.
  • Other notes about me: Include additional details about you that are not listed above and help to show who you are, eg favorite TV programs or places, favorite meals or food you dislike, significant events in your past, expectations and aspirations you have.

 

Common Medication Errors

SafetyOne of the most important aspects of physical safety for chronic patients is dealing with the myriad of medications involved in their care.  In fact, medication errors may be one of the first warning signs you saw that led you to realizing your loved one needed additional help.

A great resource for reducing medication errors is this article provided by the Mayo Clinic.  You will find many medical safety ideas that you may not have already considered.

Another article that is helpful in avoiding medication errors is from Centers for Disease Control and Prevention.  Here you will find some specific warnings about certain medications that need close monitoring as well as excellent tips for managing medications.

Your aging loved one may not be ready to give up control of medication management.  This may take some time to convince him/her.  For us, it took quite a bit of conversation and an unfortunate hospital visit for our mother to give up that control and allow us to fill her pill box weekly.  She had become quite ill and had to spend weeks recovering from the effects of medication errors she had unwittingly committed.  We were lucky that the effects of medication misuse hadn’t become permanent, yet.

Remember to use the genus™ App to keep your loved ones’ medications list up to date.  It truly is worth the time and effort to input the medication data into the app.  This part of the app in the Medical platform will provide you with medical safety information when you visit the doctor’s office, consult with a pharmacist, or make a plan for safe medication dispersal.   All this at the tip of your fingertips, wherever you are!   Together, we can care better.

Hiring a Caregiver You Can Trust

It can be so overwhelming deciding what kind of outside help to hire for your aging loved one.  Who should you hire?  How do you find them?  Are they qualified?  Can they be trusted to care for your parent?  What questions should you ask?  What is the cost?  How do I find the best care possible for my parent?

Once you start your research, it is easy to get overwhelmed with all the information out there.  Agencies that earn their money by recommending specific home-care agencies are available BUT they only refer those agencies that pay them a fee.  There are so many of these “placement agencies” ….. Home Instead, A Place for Mom, AgingCare, care.com…. the list goes on.   Talk to your friends to see what they have used and get recommendations.  Use social media to solicit recommendations.  The agencies they recommend can vary from location to location.   Agencies are run by local owners, so getting some advice from local friends and family about local agencies they have had success with is invaluable.

At-home caregivers generally fall into three categories:
  • Certified Nursing Assistants (CNAs)
    • have some medical training and must pass an exam to get a license. They usually work under the supervision of registered nurses. In home care nurses can check vital signs, care for wounds, and help with everyday activities such as bathing and eating

(you’ll often hear these referred to as “activities of daily living,” or ADLs)

  • Home Health Aides
    • generally assist with ADLs. And personal care attendants (PCAs)
  • Personal Care Attendants. (PCAs)
    • also sometimes called personal companions, assist with household chores such as cleaning, cooking and shopping

The job descriptions of these caregivers can overlap considerably, and they’re often referred to interchangeably.  You will need to decide whether to go with an established agency or hire a private home-care worker.  Both have advantages and disadvantages.   Of course with an agency you will usually find licensed care workers, but you will also pay more money than private care, in general.   However, with a private homecare worker, you often get more personalized attention.

Valuable Links for Finding the Best Outside Help

The National Association of Area Agencies on Aging (n4a) is the best place to start when looking for home-care agencies.  They are a government service that is not affiliated with one agency over another.  This link will take you to eldercare.gov which is a affiliate of n4a in which they recommend agencies that provide outside help.  https://www.n4a.org/hcbs

When considering an agency, you may want to check out this article and the corresponding links from the National Association for Home Care and Hospice.   They list some great questions to ask when interviewing home-care agencies as well as a database of agencies.

Whether hiring a private home-care provider OR an agency, here is a list of questions to consider as well.  This article provided by the Mayo Clinic breaks down the questions depending on whether you are going with private care or agency care.  This is a good article to read in helping you to decide which course of care to take.

Finding the best home care for your loved one can be a daunting task, but if you are armed with the proper information and questions, it will make the job a bit easier.  Remember to involve your home care aides in the use of the genusConnect™ App.  Their use will provide you with the best up to date information on the care of the patient as well as provide you with tools to make your job easier.   The home-care workers will love the feedback you can leave them within the app.  genusConnect™ provides you with a valuable communication tool to help you provide the best care, together.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Helpful Checklists for Givers of Care

Home Safety

The most important checklists you will need right away when caring for an aging loved one are listed below.  To print these checklists for use at home, you can access this article from your home computer by going the website.  https://www.giversofcare.org

This website is where all the articles from the Genus App are housed, so if reading from a computer is easier, you can have access from this site.

  • This checklist will help you with the many things to think about when looking for a long term facility for providing care for a loved one.
  • This checklist will help you choose an agency for In-Home-Care.
  • A medication checklist that you may want to use if you are not documenting meds in the Genus™ App.
  • This checklist will help you gather all the important financial and legal documents and information you need to have on hand when caring for a loved one.
  • A home-safety checklist is always a good idea to make sure your loved one is safe.
  • The VA provides some more useful checklists when caring for a Veteran on this site.
Disclaimer:  These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the genusConnect™ of any of the products, services or opinions of the corporation or organization or individual. genusConnect™ bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.