You are NOT Alone!

If you are reading this article, then you are being blessed by a church that cares about you and your situation.  The team at genusConnect™ recognizes that the spiritual community (churches) wants to support their members in any possible way that they can when they are enduring hardships.  You are NOT alone!   As a result, Genus™ offers a free church platform in our app that will allow members of the care community to choose a church to come along side them during this difficult time in life.  If your church doesn’t offer this platform yet, you may want to encourage them to contact genusConnect™ to be added to the growing list!

 

Providing care, and even receiving care, can be one of life’s greatest challenges.   Over 40 million people in the US are involved in providing care of some sort for a loved one.  Nearly ½ of those providing care have reported depression and anxiety over the situation.  Your church cares and wants to help.

 

Different churches have different ways of helping, and the church connected with your Genus™ app has decided upon the best ways they can help.  Some of the ways churches are offering help through Genus™:

  • Request a prayer
  • Request a pastoral visit
  • Request transportation
  • Request a meal
  • Connect with the church and other avenues of support (support groups)
  • Inspirational, faith-based stories

 

We have a saying at genusConnect ™: Once a caregiver, always a caregiver.  Someday, when your caregiving duties are over, you may even decide to get involved in helping others who are in a caregiving situation at your own church someday.  Talk to the leadership at your church and see how you can get involved.  Or, maybe you have friends you know who want to get involved in helping others who are enduring the stress of providing care.  You can encourage them to get involved as well.   care

 

You are NOT alone.  Genus™ cares.  God cares.  Your church cares.  God Bless you in this journey!

What Does the Bible Tell Us About Respite Care?

As caregivers who are also Christians, we need to be especially mindful of how we are following God’s will when we take care of the person God entrusted us to care for.  Whether it be a spouse, a parent, a grandparent or other aging relative, a child, or a close friend, we have an important and exhausting job.  What does the bible tell us about respite care?

In Mark 6:30-32: “The apostles returned to Jesus, and told Him all that they had done and taught. And He said to them, ‘Come away by yourselves to a lonely place, and rest a while.’ For many were coming and going, and they had no leisure even to eat. And they went away in the boat to a lonely place by themselves.”

Now, if Jesus recognized that the apostles had need for recreation and rest, shouldn’t we as Givers of Care do the same? The apostles obviously experienced stress and strain in taking the challenge of Jesus and going out into the world to spread the “good news” of the Gospel. Upon their return, they needed some “quiet time” to regroup for the next phase of their mission. Therefore, Jesus suggested that they “rest a while.”

Some of us have more need for respite time (“resting a while”) than others — it depends upon the diagnosis and prognosis of the Receiver of Care. Shouldn’t we also “rest a while” to “recharge our batteries” periodically?

The word “respite” (pronounced “res-pit”) may be new to some caregivers — but it shouldn’t be. It means “rest.” And don’t we all need some rest from our caregiving duties? Respite care provides the main caregiver with a temporary break from the daily caregiving activities and responsibilities. Using respite services can support and strengthen the Giver of Care’s abilities to continue taking care of their loved one. If Jesus told His apostles to “rest a while,” knowing that they needed that time to recover from their travels, shouldn’t you and I as Givers of Care also listen to Jesus and “rest a while?”

Respite care services can take many forms. The most common respite care services for caregivers are in-home care and adult day care centers, which are offered through community organizations, agencies, or residential care facilities. You may also be able to have family members, friends, or neighbors provide limited respite care support although these may not have professional training for the services provided.

In-home care services typically offer a range of options including:

  • Companion services typically provide the care-recipient with company and interactions. It may also include various activities.
  • Personal care or home health aide services typically assist with feeding, dressing, toileting, bathing, and exercising.
  • Homemaker or maid services typically provide housekeeping, laundry, shopping, and meal preparation.
  • Skilled care services typically help with medications and related medical requirements.

Adult day care centers typically are staffed locations where the care-recipient can be with others in a safe and caring environment. Skilled staff lead planned activities such as music, games, and art programs. Meals and transportation are often provided. When choosing an adult day care center for your spouse, ask these questions of the staff:

  • What are the hours, fees, and services provided?
  • What types of program activity do you offer?
  • Are clients with dementia separated from other participants or are they included in general activities.
  • Is the staff trained on dementia issues? This is important since many elders in day care centers have some type of dementia problem.
  • What types of healthcare professionals are on staff? How is this staff screened to make sure that they won’t abuse the clients?
  • How are emergency situations addressed?
  • How do you ensure the safety of the clients?
  • Is transportation available?
  • Do you provide snacks and meals?

Finding the right respite service for your Receiver of Care may present significant challenges. For example, your loved one may not like the respite person or the adult day care facility (I have personal experience in these areas). My wife, Carol, who has late-stage Alzheimer’s disease, had personality problems with a number of the respite persons provided by the agencies. In fact, so did I! Regarding the adult day care facility, after two visits, that was the end of it!

So how do you find the right respite care services for your loved one? I would start with these resources:

  • Contact the local association that relates to your spouse’s diagnosis and prognosis. In my case, that was the Alzheimer’s Association. They helped me determine which respite services I needed and provided referrals for my area.
  • Contact the Eldercare Locator to connect with your local Area Agency on Aging or local community service. They can help you to identify local respite care services. Call 1-800-677-1116 or do an internet search for your local agency. In my community we have an agency called SOC (Society for Older Citizens) that provides help with securing respite care.
  • Check with your church or local religious organizations. They often offer respite services, albeit on a limited basis, for community members.
  • Consider asking or hiring a family member, friend, or neighbor to spend time with your spouse while you take a break.

Why should you consider respite care for your loved one — and yourself? Because, as a Giver of Care, you are at a greater health risk than your loved one! Think about it. That’s because by devoting yourself to the needs of your Receiver of Care, you may tend to neglect your own health. You may not recognize or you may ignore the signs of illness, exhaustion, or depression that you are experiencing. But recent studies have proven what family caregiver advocates have known for a long time: providing care to someone that you love — whether full-time, part-time, or long distance — takes a huge toll on caregiver health, physically, mentally, and spiritually.

A whole body of research now demonstrates the correlation between caregiving, stress, and poor health. It is now recognized that the stress and strain of caregiving results in any number of long-term health effects for all family caregivers, including:

  1. Infectious diseases
  2. Depression
  3. Sleep deprivation
  4. Premature aging
  5. Higher mortality (death) rate

These findings mean that the cumulative effects of the stress of caregiving are not laughing matter.

No wonder that Jesus told His apostles to “Come away by yourselves to a lonely place, and rest a while.” If that advice is good enough for Jesus and His apostles, shouldn’t it be good enough for you and I as caregivers? I know it is for me! Is it for you?

 

WORDS TO CARE BY . . .

“Come away by yourselves to a lonely place,

and rest a while.”

Mark 6:31

Finding and Paying For Long Term Care

 

You have found the home-care provider or facility you want to help with the care of your aging loved one, but how does one pay for this?  If your loved one doesn’t have long-term health insurance, things can get expensive very quickly.   This government website answers the many confusing questions involved with the financial end of providing care.

Included in this link is a search engine for finding facility care, home care, and just about anything else you can think of provided in this resource.  The fact that it is not a private industry that receives pay for recommendations is a good way to double check on what’s available to your family to care for your loved one.

 

Hiring a Caregiver You Can Trust

It can be so overwhelming deciding what kind of outside help to hire for your aging loved one.  Who should you hire?  How do you find them?  Are they qualified?  Can they be trusted to care for your parent?  What questions should you ask?  What is the cost?  How do I find the best care possible for my parent?

Once you start your research, it is easy to get overwhelmed with all the information out there.  Agencies that earn their money by recommending specific home-care agencies are available BUT they only refer those agencies that pay them a fee.  There are so many of these “placement agencies” ….. Home Instead, A Place for Mom, AgingCare, care.com…. the list goes on.   Talk to your friends to see what they have used and get recommendations.  Use social media to solicit recommendations.  The agencies they recommend can vary from location to location.   Agencies are run by local owners, so getting some advice from local friends and family about local agencies they have had success with is invaluable.

At-home caregivers generally fall into three categories:
  • Certified Nursing Assistants (CNAs)
    • have some medical training and must pass an exam to get a license. They usually work under the supervision of registered nurses. In home care nurses can check vital signs, care for wounds, and help with everyday activities such as bathing and eating

(you’ll often hear these referred to as “activities of daily living,” or ADLs)

  • Home Health Aides
    • generally assist with ADLs. And personal care attendants (PCAs)
  • Personal Care Attendants. (PCAs)
    • also sometimes called personal companions, assist with household chores such as cleaning, cooking and shopping

The job descriptions of these caregivers can overlap considerably, and they’re often referred to interchangeably.  You will need to decide whether to go with an established agency or hire a private home-care worker.  Both have advantages and disadvantages.   Of course with an agency you will usually find licensed care workers, but you will also pay more money than private care, in general.   However, with a private homecare worker, you often get more personalized attention.

Valuable Links for Finding the Best Outside Help

The National Association of Area Agencies on Aging (n4a) is the best place to start when looking for home-care agencies.  They are a government service that is not affiliated with one agency over another.  This link will take you to eldercare.gov which is a affiliate of n4a in which they recommend agencies that provide outside help.  https://www.n4a.org/hcbs

When considering an agency, you may want to check out this article and the corresponding links from the National Association for Home Care and Hospice.   They list some great questions to ask when interviewing home-care agencies as well as a database of agencies.

Whether hiring a private home-care provider OR an agency, here is a list of questions to consider as well.  This article provided by the Mayo Clinic breaks down the questions depending on whether you are going with private care or agency care.  This is a good article to read in helping you to decide which course of care to take.

Finding the best home care for your loved one can be a daunting task, but if you are armed with the proper information and questions, it will make the job a bit easier.  Remember to involve your home care aides in the use of the genusConnect™ App.  Their use will provide you with the best up to date information on the care of the patient as well as provide you with tools to make your job easier.   The home-care workers will love the feedback you can leave them within the app.  genusConnect™ provides you with a valuable communication tool to help you provide the best care, together.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Helpful Checklists for Givers of Care

Home Safety

The most important checklists you will need right away when caring for an aging loved one are listed below.  To print these checklists for use at home, you can access this article from your home computer by going the website.  https://www.giversofcare.org

This website is where all the articles from the Genus App are housed, so if reading from a computer is easier, you can have access from this site.

  • This checklist will help you with the many things to think about when looking for a long term facility for providing care for a loved one.
  • This checklist will help you choose an agency for In-Home-Care.
  • A medication checklist that you may want to use if you are not documenting meds in the Genus™ App.
  • This checklist will help you gather all the important financial and legal documents and information you need to have on hand when caring for a loved one.
  • A home-safety checklist is always a good idea to make sure your loved one is safe.
  • The VA provides some more useful checklists when caring for a Veteran on this site.
Disclaimer:  These links are being provided as a convenience and for informational purposes only; they do not constitute an endorsement or an approval by the genusConnect™ of any of the products, services or opinions of the corporation or organization or individual. genusConnect™ bears no responsibility for the accuracy, legality or content of the external site or for that of subsequent links. Contact the external site for answers to questions regarding its content.

Medical Safety for Receivers of Care

One of the most frustrating things to deal with when caring for an aging parent is the many health complications that arise as one ages.   Medical safety is of key concern.  Many family member also acting as caregivers have not had a great deal of experience dealing with doctors and various medical safety issues.   There are many questions that arise, making the whole caring experience a bit overwhelming without the proper information.

Using the Genus™ App

You can document your loved one’s medical conditions in the medical section of the app, list the doctor contact info for that condition along with pertinent medications.  To have all this information literally at your fingertips on your phone is invaluable.   All it takes is one person dedicated to entering the information, and once it is there, any approved member of your care community can easily access this important info as needed.   The end result is caring better, together.

Most important to medical safety is the value of tracking specific medical information inside the app.  Maybe you want to track the patient’s blood pressure and heart rate each day, along with their mood and mobility factor.  All of this is easy to do with the touch of a few keys using the Genus App.

Help in an Emergency

I can honestly say that if I had this app available to me when my dad was alive as we were caring for him with his Alzheimer’s condition, it would have been very helpful.   More than once I was called by the nursing home to say that my dad was being sent to the ER due to a fall or something similar.  Always in the middle of the night.  Then I would go to the ER, sleepy and bleary-eyed, being asked all kinds of questions by the doctors of which I had no answers for.   You see, I wasn’t the family member in charge of the medical information. That was my sister Jane.  She was the medical guru of the family and did a wonderful job keeping track of our parents’ medical conditions and appointments.  But that one person can’t always be available during an emergency.  Had I had the medical information on my phone, as we can do with the Genus App, it would have provided better emergency care for my dad and much less frustration for us both.  I am grateful to have this App to use with my mom, especially the emergency feature: the little red cross.   I have all the pertinent information at my fingertips!  What a relief!!

Another helpful website

For dealing with medical safety, go to https://healthfinder.gov/     Here you can type in the age of your patient and see what recommended health screenings are suggested as well as find out information on a variety of health issues that may be affecting our loved ones.   There is plethora of information here to help you navigate through these complex health issues.